Bamidele Adenipekun, from Swansea, stated it became now not mentioned “because of worry”, that could result in aftercare troubles.
Cancer Research UK stated greater research changed into wished “to understand why for a few people cancer stays taboo”.
Breast screening uptake in these communities within the UK is decrease than average, stated Public Health Wales.
Bamidele stated in her network it’s miles “an unwritten rule” that an infection like cancer is kept “in the family and you do not proportion it”.
“In a place like Wales, wherein you are in the minority, speak about your revel in of cancer is not the manner you need to be perceived,” she stated.
“There are cultural reasons and feelings of being misunderstood that may run quite deep.”
The forty-two-year-old, who become diagnosed with breast cancer in 2014, added that speak me approximately breasts is “very personal and feminine” and “no longer the completed component”.
Some black, Asian and minority ethnic (BAME) communities “might not even say the word cancer”, said Heather Nelson, of the charity BME Cancer Voice.
“It is a self-gratifying prophecy while those groups may not have the screening so their diagnosis is worse,” she introduced.
‘It’s no longer desirable enough’
But Bamidele, who volunteers at Breast Cancer Care, said her aftercare was “stellar” however this is an “uncommon experience” for a girl from a black and minority ethnic background.
Her sister and mother, who both died from breast most cancers, had aftercare which made them sense “excluded”, she introduced.
After chemotherapy, her sister became referred to a wig maker who most effective had Caucasian hair.
“She lost her hair, she lost her breasts – and he or she changed into noted someone who failed to even have a clue,” she said.
“It did now not in shape her in any respect because it becomes made for a white woman.
“What it boiled right down to was not being listened to and being put in a container.”
Heather delivered that one woman who got here to BME Cancer Voice turned into informed to put colored tights around her breast prosthesis because it could not be sourced within the proper coloration.
“It is simply not proper sufficient,” she delivered.
Breast Cancer Care scientific nurse professional Catherine Priestley said it can be a “postcode lottery” to get matching prosthesis or wigs for girls from BAME backgrounds.
Dr. Ardiana Gjini, of Public Health Wales, said: “We realize that [breast screening] uptake within these groups across the UK is lower than average.”
She added that is for numerous reasons inclusive of getting admission to, cultural troubles and language boundaries.
The late stage at analysis for breast most cancers in England is greater, not unusual in Black African (25%) and Black Caribbean adults (22%), compared to White British adults (thirteen%), consistent with Public Health England’s 2016 statistics. They do not have figures for Wales.
Sophia Lowes, of Cancer Research UK, said: “Talking about cancer can be tough and in a few communities and cultures it could be even greater difficult.
“While screening performs a critical part in diagnosing cancer early, we recognize the remarkable majority of breast cancers are nevertheless recognized via women locating a lump or noticing different signs.”